The President of the Albinism Association of Nigeria (AAN), Dr. Bisi Bamishe, has called on the government and stakeholders to accelerate efforts to include skin screening and cancer treatment in the National Health Insurance Scheme (NHIS).
Dr. Bamishe made the call in her welcome address at the International Albinism Awareness Day (IAAD) 2025 celebration in Abuja, themed: “IAAD 2025: Demanding Our Rights – Protect Our Skin, Preserve Our Lives.”
Describing the theme as a “powerful call to action,” she emphasized that many persons with albinism face severe health challenges—particularly skin cancer—which remain largely unaddressed due to lack of access to affordable treatment.
“One of the most pressing challenges is the harsh environmental exposure leading to increased cases of skin cancer. Many of our members cannot afford treatment, and we are losing lives daily,” Bamishe said.
She passionately appealed for the integration of skin care services into NHIS, stating that this would save lives and offer hope to many families.
Dr. Bamishe also highlighted the educational disadvantages faced by students with albinism, primarily due to visual impairments, and called for full implementation of the National Albinism Policy on Education. She urged authorities to provide adequate learning aids to ensure inclusive and quality education.
“May this year’s celebration renew our commitment to upholding the rights and dignity of persons with albinism. Let it inspire bolder advocacy, inclusive policies, and sustained investment in our health and education,” she said.
Reviewing recent progress, Bamishe shared that the association has expanded its presence to 26 states, with plans to cover all 36. Other achievements include:
- Registration with JONAPWD, OPDs, NCPWD, and key MDAs
- Acquisition and furnishing of a national project office
- Strengthened stakeholder engagement and social integration strategies
“We are laying strong foundations for meaningful social inclusion and long-term impact,” she noted.
The Chairman of the AAN Board of Trustees, Prof. Sam Amadi praised the association’s growing structure and recognition.
“When we are united, we can amplify our voices and articulate our needs effectively. Reforms are underway, but more advocacy—especially in education—is needed,” he said.
Mr. Kaura Wakili, Chairman of JONAPWD (FCT Chapter), acknowledged the unique challenges faced by persons with albinism and commended their resilience.
“We must push for better healthcare, equal opportunities in education and employment, and protection from all forms of discrimination,” Wakili said.
In a similar vein, stakeholder Mr. Afam Kasim encouraged persons with albinism to take personal responsibility for their skin health.
“Use sunscreen, avoid excessive sun exposure. While the government’s support is vital, we also have to protect ourselves,” he advised.
The event drew stakeholders from both public and private sectors, as well as AAN executives from across the country, reinforcing a growing movement for recognition, inclusion, and protection of persons with albinism in Nigeria.
